Monday, January 9, 2012
WILLIAM TURNS 3
Yeah--William turned 3 yesterday. We finally were able to convince him that he still had to stay in Nursery for another year--he thought he could go straight to Sunbeams in Primary. Poor little guy. We told him they would sing to him and he got mad and said you can't sing without a cake--we then had to convince him that you can sing happy birthday without a cake. He is quite the little character and we all adore him. Sometimes it is hard to say No when he looks at you with those big blue eyes and his big cheesy grin. The bike on his cake didn't last until family came to sing--he was so excited to play with it. Veta found him licking it clean of icing so "I can play with it--Mom said" only thing is I didn't say, but after seeing his cute face with green icing above his lip how could I say no He had a great day telling everyone, "I 3 today." He just needed a little more practice on blowing out his candles. He keeps me laughing.
Emily's New Diagnosis--Heidi's rambling as I still am processing things
My mind is in quite a whirl lately. Our trip to PCMC in November brought some questions of a possible new diagnosis for Emily, but doctors couldn't agree and were unsure. So I was able to keep things in the back of my mind and still hope that maybe they really hadn't seen anything new--or in actuallity realized that something was there all along, but very slight and saw more positivily as they went back to look--However, a call on Friday from a very special and caring doctor came news of "yes we have to say we have a different diagnosis". Since then I find myself doing my best to be strong and remind myself I will learn more (and not to worry about the unknown), but then when noone is looking the tears just come with no warning as the questions of the unknown haunt my mind.
Emily's new diagnosis is Langerhans Cell Histiocytosis. It is when what is known as langerhans cells(which are immune cells) over produce. So since these cells are to help the body fight off infection when they overproduce they start fighting the body--so in other words her body is attacking itself. So far we are only aware of her bones being effected, but they will test everything this week to make sure this is correct. Bones are a low risk of this disease where other organs being effected can make it high risk. This is all just what I am slowly learning and hopefully more answers and knowledge with come with our visit with her newly appointed Oncologist on Tuesday. Yes I can say the word--Oncologist (a speacialist in cancer). This disease has some similiarities of cancer--but it is not cancer. However, one of the treatments for this disease is low doses of Chemotherapy. I think that is where my haunting questions come from.....
*Will she lose her hair?,, Will she be sick all the time or more often?,, Will she lose weight and lose so much of who she is?,, Will she have to miss more school than she already does--this is big because she loves school so very much? those that read this blog will be the first to hear these questions since I have tried to leave them in my mind so as not to worry Jeff, Emily, or anyone else in the family--but sometimes you have to let things out so they do not consume you and really it does no good to worry about things that might not even be a concern when we get more answers. So thanks for being a sounding board and letting me lose some of my tears so I can once again put on a happy face and smile through this new challenge.
I am just so very thankful for my knowledge of the gospel of Jesus Christ and can find comfort in knowing that he is in control and all will work out for the best.
I also want to take a moment to thank all of you that fasted and prayed for her and her doctors on Sunday. I told Emily about it and she said if everyone could do this for her she could do it too and she could take her medicines after lunch and breaking her fast.
You are all amazing examples and thanks so much for your love and support--I know it is what gets us through.
Tuesday, January 3, 2012
TIME FLIES--BLAST THROUGH THE PAST
Once again I am amazed at how much has happened in such a short amount of time.
And once again I have let things fly by without taking time to record and share them.
Luckily it is never too late to throw something together so you can get a bit of what has happened
since my last blog--almost 7 months ago--WOW too long.
May--last tractor ride, Courtney's b-day, Real yard work begins, Memorial Day
June--Lillian is in Seussical Musical Jr., Family Reunions, New kitty
July--Happy 4th, Happy 5th Birthday Jonathan, Yippy--Preston Rodeo
August--Veta's B-day, Jeff's B-day, Back to School
September--we did lots of those get back into the swing of things--here is just random pictures that may or may not have really happened in September.
October--Idaho History Project by Veta, Emily's b-day, Halloween
November--Make-a-Wish, A stay at PCMC, Thanksgiving
girls write make-a-wish letters
fun in the snow--it is supposed to be a turkey
3day stay at PCMC
Turkey and gravy--just a small part of dinner--YUMMY
December--The BIG MOVE (too busy for pictures), 100 AR points & CHRISTMAS
Jon in a community childrens choir for Christmas concert
piano recital
make-a-wish friends brought each girl a make-a-wish barbie for the holidays
stop snooping--Santa's Elves are watching
Our favorite tradition-Egg Nog and Donuts for Christmas morning
Santa brought swimsuits for our Make-A-Wish Water Park trip in March
Yippy we are back to January again
A new year--2012
Hopefully a new start to keeping better record as things happen & not at the end of the year again.
I hope your new year will bring new discoveries as ours already has started--Enjoy this fun video of William blowing out a battery candle--it made us all laugh--may you find joy in your family's new discoveries.
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