Emily's trip to PCMC

Emily was a little trooper and smiles all the way.  We met with Oncology on Wednesday and learned more about her plan of treatment and about LCH--her new for sure diagnosis.  She had fun drawing on the board.  Then she got to go into Same-Day Surgery for Port placement, Endoscopy, & Colonoscopy with biopsy on Thursday.  We were scheduled for 11:30,but didn't get in until 1:30 due to complications with the patient that was before us.  She was already asleep when they came out to get her--so she went back still happy and already sleepy. All went very well and we were able to head home that night at 7:30.  No pictures were taken until we were home and Emily was placed at her new home on the couch for now anyway.  Mom was a little worried as the surgery took the full time and oncology wanted to see me again before leaving.  Luckily they just wanted to give me a little more information on her Port and things to watch for.  This will be a crazy year once again for us--but I don't think we would know how to handle life if it wasn't crazy with something new.  They are putting her back on Prednisone (a steroid) and also she will be on low doses of viblastine chemo every week for the first 6 weeks then we will possibly go to every 3 weeks up to a year.  Until we know how she responds and reacts to treatment we will have to go to PCMC for her care--then if she does okay they can eventually look at moving her closer to home for treatments.  We are going to be able to get to Salt Lake on sleep mode after awhile-ha,ha,ha.  So that is what we are going to be doing for awhile

THANKS TO ALL OF YOU FOR YOUR THOUGHTS, TIME, COMPASSION, FASTING, & PRAYERS--it truly is what gets us through it all.  Family and Friends are truly a great blessing.